My Life

Ooooops I Did It Again

I’m a shit poster. I can’t help it. It’s who I am and one just can’t change something like that. IF YOU LOVED ME, YOU’D BE ABLE TO LET THIS GO. My sense of humor doesn’t come across *too* unhealthy, right?

Alright, here’s the news: Mattie’s Broviac comes out Monday!! WHAT?! Can you believe it will be exactly four months since it was put into place? September 13th, a friday. Now, a Monday to start the week off free! We are beyond ecstatic about the speedy appointment. St. Louis Children’s Hospital was as close to perfect as I think an experience like this can get. I’m still in awe of the force-field created by knowledgeable heroes-ready to fight for our girl. I’m very exhausted; I’m mostly grateful.

Holy heck! Could all of what has already happened gone so many other ways or what?! I’m overjoyed to be almost done watching this fight. Here, though, is a quick little update on what is to come:

She will have a procedure done on friday by her urology team. Since she had recurrent UTIs, they want to make sure there isn’t any backflow of urine from the bladder back into the kidneys. We’re hoping she can at least get some “laughing gas’ because it involves an urinary catheter and takes, from what we can tell, about thirty minutes. Ugh. We’ve seen her get two urinary catheters done before and it’s one of my top least favorite things. Awful. Update: She did so well (like always!)!! Everything looks normal and we have no plan for UTI prevention after the sixth month mark hits (6 months after chemo means immune system ready to ~roll~ again)

Next, her Broviac finally bites the dust! I always get really anxious when she has surgery, but I am so freaking stoked too…I guess similarly to last time. Wish her safety and the best, please!

Lastly, I have a tonsillectomy most likely on wednesday. Which brings me into our next discussion- my ENT doctor insists that I will feel absolutely miserable for an entire two weeks. I keep finding myself thinking thoughts of optimism, but I might be down for the count again. Things are getting a little wild here. Hm, seems like a pattern is brewing. This time, though, the chaos is all good! I’m getting back to my appointments, Mattie is finishing up her active duty, and we’re slowly preparing to move! YES! Move. The plan, as of right now, is to move into Oregon around June. A new adventure awaits and we couldn’t be more excited-yeah I’m talking for everyone in the family, but I can just tell, okay?

“So, Kait, what the heck is up? When do you post? Is this a cancer blog? Why would we even want to read about you and not Mattie?” All great questions. I plan on changing this up. More ~spontaneous~, but o r g a n i z e d. It’ll be fun, I promise. It will probably get weird. Most likely, for sure. I don’t know- stick with it.

Take care of the planet and share love with the universe.

Peace and progress,
-Kait

3 thoughts on “Ooooops I Did It Again”

  1. Hooray for Mattieā€™s catheter and broviac news! Stay strong and get ready to say goodbye to those dang tonsils. Cyber hug and love to you all. B

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